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F.R.E.D.
(Frequently Requested Educational Documents)  These documents are available to anyone with an interest in brain injury.  Please call our toll-free Helpline (1-866-644-6242) or contact your CSN Coordinator for assistance.  We will be happy to help you select the documents which will be most helpful for you.

Click on a category to view a list of documents which are available.

ADVOCACY

AGING & BRAIN INJURY

ALTERNATIVE THERAPIES (Cranio-sacral, chiropractic, etc.)

ASSISTANCE DOGS

ASSISTIVE TECHNOLOGY (communication, mobility, Medical/Adaptive Equipment Suppliers)

BEHAVIOR ISSUES

BIBLIOGRAPHIES

CAREGIVER (Training caregivers, Respite Care)

COMA

COMMUNICATION (communicative disorders, language impairments)

COMPUTERS

DIET AND LIFESTYLE

EDUCATION (Pediatric & Adult, Transition & Postsecondary education issues, Behavior, the IEP)

FACILITY EVALUATION

FAMILY ISSUES (special needs of families, family education & support, what to expect)

FINANCIAL

FOREIGN LANGUAGE RESOURCES

GLOSSARIES (medical and other specialized terms related to brain injury)

HOME CARE

HOUSING

INSURANCE & MANAGED CARE

LEGAL & ETHICAL ISSUES (guardianship, POA, courts, legal representation, estate issues)

LEGISLATION (public policy, legislative advocacy related to TBI & disability)

MEDICAID

MEDICAL (Brain disorders & treatments, non-BI problems, related diagnostics)

MEDICARE/SSA (Social Security Administration resources, government health programs)

MENTAL HEALTH (psychiatry & brain injury, counseling & brain injury - technical and service information)

MILD BRAIN INJURY (Concussion, post-concussive syndrome, misdiagnoses)

NEURO- AND REHAB PSYCHOLOGY

PAIN MANAGEMENT

PEDIATRIC BRAIN INJURY

PEOPLE FIRST

RECREATION (camps, travel & leisure activities)

REHABILITATION

SEIZURE DISORDER/EPILEPSY

SEXUALITY

SPORTS AND BRAIN INJURY

STATISTICS

STRESS

SUBSTANCE ABUSE

SUPPORT GROUPS

SURVIVOR

TBI (General)

TRANSPORTATION

VISION AND HEARING

VOCATIONAL (Vocational rehab, workers comp, work incentives)

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ADVOCACY

  • Advocacy for the TBI Professional (1991, 4 pp., from RRTC on Severe TBI, on developing an advocacy perspective for effective individual and systems advocacy)
  • Advocacy Statements Regarding Persons with Brain Injury (1995, one page, 9-point list of rights of individuals with brain injury to services and types of outcomes)
  • Becoming an Effective Advocate (1994, in NARIC Quarterly: a two-page article on advocacy, plus two pages describing reports on TBI rehab published in 1992)
  • Hints for the Advocate (1992, one page sheet on what keeps advocates focused and persistent)

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AGING & BRAIN INJURY

  • The Effect of Brain Injury and the Aging Process, by David Strauss, PhD
  • The Effects of Aging on People with Brain Injury

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ALTERNATIVE THERAPIES

  •  Alternative Therapies (1999, 5pp., Health and Medicine, Vol. 5, No. 1)
  • Cranial Osteopathy
  • Cranial-Sacral Therapy vs. Cranial Osteopathy: Differences Divide
  • Energy System and Self Help Strategies (Brenda Asterino, energy practitioner, healing light method)
  • A Family Guide to Alternative Therapies
  • Functional Visual Field
  • Psychotherapy and Qigong: Partners in Healing Anxiety (1998, 5pp., Michael Mayer, Ph.D., Third Edition)
  • Qigong Exercises (1997, 7pp., Knight-Ridder/Tribune News Service)
  • What is Syntonics? (information on optometric phototherapy – downloaded 7/8/03)
     

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ASSISTANCE DOGS

  • Canine Companions
  • Maximizing Independence with the help of an assistance dog, “assistance dogs can...” by Tina Mooney, et al, (2002)
  • Maximizing Independence with the help of an assistance dog, Pet vs. Assistance dog, etc. by Tina Mooney, et al (2002 BIAOH Conference presentation slides-handout)

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ASSISTIVE TECHNOLOGY

  • Assistive Technology for Individuals with TBI (no date, one page outline of AT uses for motor, cognitive, sensory, and communication difficulty)
  • Assistive Technology for Persons with TBI (1992, 6 pp.)
     

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BEHAVIOR ISSUES

  • 10 Ways to Support A Person with Challenging Behavior
  • Behavior Problems Following Head Injury
  • Caregiving & Behavioral Disabilities
  • Head Injury & Behavior Management
  • Impaired Cognition & Behavior Problems: Double Trouble, by Carolyn Rocchio (2 pp., in Family News and Views)
  • Practical Advice for Behavioral Management, by Michael Howard, PhD
  • When Unexpected Problems Develop after Brain Injury by Carolyn Rocchio (1997, 2 pp.)

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BIBLIOGRAPHIES

  • Bibliography Resources (BIAA Website, 2000)
  • Miscellaneous -- bibliographies

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CAREGIVER

  • Caregivers’ Action Plan (2 pp., from 1984 guidebook Family Caregivers and Dependent Elderly, sample chart and explanation for completing the plan to organize use of resources, two gerontologists as authors)
  • Caregivers Experience Heavy Emotional Toll (no date, 2 pp., from Today’s Columbus Woman)
  • How to Maintain a Strong Immune System, by Carolyn Rocchio (1995, 1 page)
  • Strategies for Families & Caregivers, Judith Falconer (no date, 3 pp.)
  • Strategies to Prevent Caregiver Fatigue (1993, 2 pp., from Headlines)
  • Treating Caregiver Depression (1993, 1 page, from Headlines)

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COMA

  • Coma: Also Known as Vegetative State (downloaded from www.ecureme.com/emyhealth/data/Coma.asp, August 2003)
  • Coma Guide for Caregivers (from Delaware Health and Social Services, division of Services for Aging and Adults with Physical Disabilities)
  • Straight Talk About Coma by Carolyn Rocchio (1996, 2 pp.)
  • What Is Coma Stimulation? How Effective is this Unique Therapeutic Technique?… by Nathan Zasler, MD (19??, from Brain Injury Source, 2 pp.)
  • What Does Coma Mean? (1995, 4 pp., in HeadsUP, from the HealthSouth Rehab Hospital of Utah)
  • When Your Child is in a Coma (Tip Card, Lash & Associates)
     

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COMMUNICATION

  • Augmentative Communication (Tip Card, Lash & Associates)
  • Aphasia (1993, 2 pp., description of types and symptoms, associated emotional and medical problems, diagnosing aphasia, prognosis and treatments - produced by Learning Services Corporation)
  • How Communication Changes Over Time (Tip Card, Lash & Associates)
  • Strategies for Word Recall (1 page, no date, brief 13-point list of suggestions)
  • Subtle Changes in Communication After Traumatic Brain Injury (1 p., 1994, from RehabUpdate)

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COMPUTERS

  • Software Update 1998: Commercial Programs Useful in Cognitive Retraining (4 pp., J Head Trauma Rehabil, 1998, 13(5))
  • Websites with Brain Injury-Related Information (2003)
     

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DIET AND LIFESTYLE

  • Eating Disorders (1993 NIMH pamphlet, free of copyright restrictions)

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EDUCATION

  • Adolescent and Young Adult
  • Assistive Technology for Reading & Writing (Tip Card, Lash & Associates)
  • Back to School After Brain Injury by Carolyn Rocchio (1997, 2 pp., Family News and Views)
  • Back to School after a Mild Brain Injury or Concussion (Tip Card, Lash & Associates)
  • Back to School after a Moderate to Severe Brain Injury (Tip Card, Lash & Associates)
    Basics for Parents: Your child’s evaluation (1999, from NICHCY, four pages, facts on determining needs for school services, some IDEA information, steps in the process, development of the educational program)
  • Behavior, Discipline & Special Education
  • Best Practices Manuals for School Re-Entry (list updated Dec 2000, 2 pp., bibliographic information for several well-regarded manuals)
  • Bing Bang Bong - When Your Child Has a TBI (Tip Card, Lash & Associates)
  • Children & Youth with Emotional & Behavioral Disorders
  • Creating Options 2004: A Resource on Financial Aid for Students with Disabilities, 2004 Edition. (19 pages, the HEATH Resource Center, Washington, DC, www.heath.gwu.edu)
  • Creating Options: A Resource on Financial Aid for Students with Disabilities, 2003 Edition. (19 pages, from the HEATH Resource Center, Washington, DC)
  • Educating Students with TBI
  • Education and the Traumatically Brain Injured: Rights, Protections,
  • Educational Modifications for Students
  • Educational Needs Following Head Injury
  • Gathering Information When A Student Has TBI (Article/Information Sheet, Lash & Associates)
  • Getting Ready for College: advising High School Students with Learning Disabilities
  • The Head Injured Student Returns to School
  • Head Injured Survivor on Campus: Issues and Resources
  • Help! My Child is Ready to Return to School
  • IEP Packet: Sequence, Needed Transitions
  • Interventions for Chronic Behavior Problems
  • Learning about Special Education, by Marilyn Lash, M.S.W., (Lash & Associates, Information sheet/Newsletter article)
  • Modifications for Students
  • Myths and Facts When Your Child has a Brain Injury (Tip Card, Lash & Associates)
  • Neuropsychology and School: Understanding how a BI affects a student’s behavior (1998), by M. Lash & R. Savage (Tip Card, Lash & Associates)
  • Parents Have The Right To Complain (1994, 2pp., complaint process steps, from FORUM, Ohio Coalition for the Education of Handicapped Children)
  • Planning for Inclusion (NICHCY)
  • Planning In-School Transitions for the Students with Brain Injury (Tip Card, Lash & Associates)
  • Questions often asked by parents about special education services, NICHCY Briefing Paper (1999) (eligibility for special education, IEP contents and process, evaluation procedures, parent resources)
  • Rehab Update: Special Issue on Families & Education
  • Research into Practice: Serving Students with TBI
  • Rising to the Discipline Challenge
  • School Re-entry Following Head Injury: Managing the Transition From Hospital To School
  • School Re-Entry for Students with Head Injury: Stepping Stones and Stumbling Blocks
  • Serving Students with TBI: A New Challenge
  • Special Education IEP Checklist (Tip Card, Lash & Associates)
  • The Student with a Brain Injury: Achieving Goals for Higher Education (2001, 16 pages, from Heath Resource Center)
  • Students with Disabilities Preparing for Postsecondary Education: Knowing Your Rights & Responsibilities (July 2002) (US Dept of Education, Office for Civil Rights)
  • Teaching Strategies for Students with BI, by J. Tyler, J. Blosser, R. DePompei (Tip Card, Lash & Associates)
  • Therapies in School (Tip Card, Lash & Associates)
  • Transitioning Pediatric Patients into Educational Systems
  • Young Adults with Brain Injury and College, by Jen Bunch, JD (5 pp., TBI Challenge, Vol. 4, No. 2, 2000)

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FACILITY EVALUATION

  • A Guide to Selecting and Monitoring Brain Injury Rehabilitation Services (downloaded from BIAA website August 7, 2002)
  • What to Look for When Selecting a Rehabilitation Facility

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FAMILY ISSUES

  • Brothers & Sisters: Brain Injury is a Family Affair, Carolyn Rocchio (2 pp., 1996)
  • Coping with a Husband's Head Trauma (1989, 2 pp., written by a spouse)
  • The Effect of Brain Injury on Marriage (4 pp., from Headlines, May/June 1993)
  • Families’ Right to Choose (2 pp., 1990, by Kenny Hosack, Director of Family Advocacy, Learning Services Corp., on how to select an appropriate rehab program)
  • Families with Head Injured Members: A Personal Account, by Paul Spanbock, M.Ed. (2 pp., 1994)
  • The Family as Case Managers, Corwin Boake, PhD (2 pp., 1989, author is clinical director, Behavioral Medicine, Dallas Rehabilitation Institute)
  • The Family Perspective on Managed Care, Carolyn Rocchio (3 pp., no date, from the journal Brain Injury Source)
  • From My Family To Yours, by Mark Mitchell (12 pp., 1993, many points for families and caregivers to follow)
  • From One Family Member to Another (2 pp., no date, a parent’s account of her son’s and her family’s adjustment to injury five years after his TBI)
  • Fundamental Principles for Family and Friends (one page, 1993, Reprinted with permission)
  • Head Injuries and Family Coping, Mark Mitchell (7 pp., no date, developing coping perspectives, maintaining the rehab process, BI characteristics)
  • Head Injuries Happen to Families, Judith Falconer, PhD (3 pp., 1990)
  • Head Injury and the Family Environment, by Mark Mitchell (one page, no date, on responding effectively to a survivor’s recovery process needs)
  • Helpful Suggestions in Relating to your Head Injured Family Member (3 pp., 1984, NHIF, reproduced with permission of the Institute of Physical Medicine and Rehabilitation, Peoria, IL)
  • Helping Brothers and Sisters when a Child Has a Brain Injury (Tip Card, Lash & Associates)
  • Helping Families Cope when a Child has a Brain Injury (Tip Card, Lash & Associates)
  • How TBI Affects The Family…, Amy Herstein Gervasio, PhD (2 pp., 1993, reprint from TBI Transmit, IHIA)
  • Information & Preparation: The Key to Quality of Life after Brain Injury, Carolyn Rocchio (2 pp., 1996)
  • Living With A Frontal Lobe Brain Damaged Survivor (2 pp., 1993, by a family member of a head injury survivor)
  • Living with the Characterologically Altered Brain Injured Patient, by Muriel Lezak (10 pp., 1978, common family problems, counseling options, six key problem areas and the family response)
  • The Positive Approach to Coping, Carolyn Rocchio (2 pp., 1997)
  • Profiles of the Other Child - A Sibling Guide for Parents, F. McCaffrey & T. Fish (8 pp., no date, Nisonger Center resource: how to explain disability to and treat the sibling of a child with a disability)
  • Rising Above the Loss and Into the Future, Carolyn Rocchio (2 pp., TPN Magazine, 1998)
  • Safe Driving after Brain Injury, Carolyn Rocchio (2 pp., 1998)
  • Siblings of Children with Brain Injuries (3 pp. article in Rehab Update, Winter 1997)
  • Sisters & Brothers, Brothers and Sisters in Family Affected by TBI (16 pp., 1991, parental views of family needs, possible interventions)
  • Spiritual Life After Brain Injury, Joseph E. Kennell, PhD (4 pp., 1994, presented at the W. Virginia HIF conference)
  • Stages of Recovery (6 pp., no date, treatment approaches and suggestions for families in their response at the various Ranchos levels of cognitive function)
  • Using Community Mental Health Centers, Carolyn Rocchio (2 pp., 1999, Family News and Views)
  • Viewpoints: Issues in Brain Injury Rehabilitation, Parenting After A Brain Injury, Carolyn Rocchio (4 pp., Fall 1995, newsletter from Tangram, includes three other articles)
  • Where Do We Go From Here? by Carolyn Rocchio (2 pp., 1997)
  • You are Not Alone (3 pp., no date, adapted from Patty Smith’s article You are not Alone…, an NHIF Reprint)
     

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FINANCIAL ISSUES

  • Families Access to Funding (1990, 1 page, shares steps to cracking the funding maze)
  • Financial & Legal Resources (1989, 11 pp., reprinted by New Medico Head Injury System from the Resource Journal of the Kentucky Head Injury Assn.)
  • The High Cost of a Bump on the Head: (no date, 2 pp., detection , job modification, prevention are key components of worksite head injury programs)

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FOREIGN LANGUAGE RESOURCES

  • Brain Injury and You (in Spanish)
  • El Trauma Cerebral (2 pp., no date, pdf from www.nashia.org)
  • Hechos Sobre El Trauma Cerebral: Servicios de Emergencia Medica (2pp., fact sheet from www.nashia.org)
  • Spanish Resources
     

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GLOSSARIES

  • Glossary - General
  • TBI terminology
     

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HOME CARE

  • Checklist for Planning Home Visit
  • Some Ideas to Keep in Mind When With a Brain Injured Person (Craig Hospital)
     

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HOUSING

  • A Guide to Home Ownership for People with Disabilities (no date, four pages, published by Ohio Assn. Of County Boards of MRDD)
  • Housing Issues for People with Disabilities
  • Supported Living Choices for Survivors (no date, one page description of the goals of a supported living program, author works in supported living for a post acute rehab program in California)
  • Online Facts for Legal Concerns in Supportive Housing
    CLICK HERE
     

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INSURANCE & MANAGED CARE

  • IIssues in the Reimbursement of Brain Injury Services (1p., Headlights, Hillside Rehabilitation Hospital)
  • How To File A Consumer Complaint (Ohio Dept of Insurance)
  • What Do You Mean It's Not Covered (1998, 2 pp., Exceptional Parent, Tricia & Calvin Luker)
  • What Do You Mean It's Not Covered: Unscrambling the Insurance Maze (1995, 1p., Family News and Views, Carolyn Rocchio)
     

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LEGAL & ETHICAL ISSUES

  • Attorney List
  • Durable Power of Attorney: A Guide to Ohio’s Durable Power of Attorney & Ohio’s Living Will (material provided by Ohio State Medical Assn., 1991, and Ohio Legal Rights Service, 1999)
  • Go Get Your Head Examined: Effective Representation of Brain Injured Clients, by J. Falconer and E. Tercilla (no date, 3 pp., by two clinical psychologists)
  • Guardianship (Advocacy & Protective Services, Inc. - APSI)
  • Guardianship in Ohio, by David A. Zwyer, Esq. (March 2003, 26 pages, published by the Ohio Developmental Disabilities Council, downloaded from www.state.oh.us/ddc)
  • In Support of Closed Head Injury Victims (no date, collection of three short articles by attorney Charles Simkins: What an attorney should know before entrusted with your closed head injury case, When it describes a brain injury, the word mild is serious, and Case study – Mild closed head injury)
  • Lawyer Interview Sheet (no date, one page list of eight questions)
  • Legal Issues (1988, four page introductory information on legal issues faced by survivors and their families from NHIF)
  • Legal Issues when Teenagers become Adults after Brain Injury (Tip Card, Lash and Associates)
  • Ohio Protection & Advocacy Association
  • The Role of a “Medicaid Payback Trust” in Personal Injury Awards Granted to Disabled Persons, by Janet Lowder, et al, (1994, four page article in Ohio Lawyer)
  • The Role of the Neurolawyer in Brain Injury Case Management by attorney Nathaniel Fick (1990s, 4 page article on TBI litigation and the goal of maximum improvement)
  • Summary on Guardianship Law (no date, four page outline summary from Hickman and Lowder)
  • Summary on Wills and Trusts (no date, two page outline summary from Hickman and Lowder)
  • Special Needs Trust: A Brief Fact Sheet, by William and Kate Dussault (no date, one page on basic provisions of the law, eligibility, design and implementation)
  • Survivor Life Plan
  • Traumatic Brain Injury: Proving A Lifetime Disability, by Richard Alexander (1995, four page article, from www.alexanderlaw.com)
  • Ten Questions the Family of a Head Injured Person Should Ask Their Lawyer (no date, developed by the firm of Hill, Peterson, Carper, Bee & Deitzler of Charleston, WV)
  • The Master Trust
  • Why Do I Need A Lawyer? (no date, one page list of 13 issues a lawyer can address regarding TBI; writer is an attorney on the board of the BIA of Maryland)
     

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LEGISLATION

  • A Good First Step Toward Nationwide Aid to Persons with Brain Injury
  • Olmstead and the ADA
  • NICHCY: The IDEA Amendments of 1997
  • The TBI Act Amendments of 2000 – Short Summary
  • The TBI Act of 1996
  • The Impact of Public Policy on Persons with TBI
     

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MEDICAID

  • Medicaid Services for TBI

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MEDICARE/SSA

  • Levels of SSA Appeal
  • SSI/SSDI Information
  • Supplemental Security Income
  • Understanding the Social Security Disability Insurance Program, by Carolyn Rocchio (2 pp., 1995, records, qualifications, disability determination, appeals)
  • What you should know about the Social Security Disability Program, by Carolyn Rocchio (1997, 2 pp., from Family News and Views)
  • Win in Social Security Court: How you Qualify (3 pp., September/October 1990, Cognitive Rehabil,)

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MEDICAL

  • Clinical Case Study: Intrathecal Baclofen Therapy for Spasticity due to Brain Injury (2 pp., Brain Injury Source, March 1999)
  • Rebuilding the Brain: Cell Transplants Could Lead to Revolutionary Cures (2 pp., Business Week, Feb. 8, 1999)
  • Using Cold for Victims of Severe Head Injury (one page, New York Times, May 29, 1996)
     

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MENTAL HEALTH

  • Clinical Depression and Brain Injury
  • Coping with Post TBI Emotional Distress (4 pp., no date, from TBI Consumer Reports, RTC on Community Integration of Individuals with TBI)
  • Depression Following Traumatic Brain Injury, Lauren L. Lerner, MD (1 page, from TBI Challenge, April 1998)
  • Mental Illness & Head Injury, Bruce Hubbard, MD (1 page, no date)
  • Plain Talk About Depression (4 pp., 1994, NIMH, Office of Scientific Information)
  • The Role of Self-Esteem and Productive Behavior, by David Strauss, PhD (1995, one page)
  • What Type of psychiatric problems can a person with brain injury experience? By Anthony B. Joseph, MD (Ask the Doctor column, Brain Injury Source, Vol. 2, Issue 1)

     

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MILD BRAIN INJURY

  • Disability Management of Mild Head Injury
  • General Article: Mild TBI, by Stephen S. Kalat, PhD (1996, two page, from BIA of Colorado newsletter)
  • Mild Head Injury and Fatigue (1995, one page article from Maryland HIA newsletter)
  • Mild Traumatic Brain Injury, by Randall W. Evans, PhD (no date, brief one page definition and intervention)
  • Minor Traumatic Brain Injury: A Life Challenging Event, by Carolyn Rocchio, (1996, two page description)
  • Minor TBI: A Mind Numbing Experience
  • Neuropsychology and Mild TBI: Diagnosis vs. Misdiagnosis, by Lloyd I. Cripe, PhD, (5 pp., 1990s, from i. e. Magazine)
  • Rehabilitation Following a Mild TBI: A Team Approach (no date, reprinted with permission from i.e. Magazine)
     

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NEURO- REHAB PSYCHOLOGY

  • Neuropsychological Assessment: A Key Piece of the Puzzle After TBI, by Carolyn Rocchio (1998, two-page, from BIA’s Family News and Views)
  • Neuropsychological Assessment: The Key to Understanding Changes that Result from Brain Injury, by Carolyn Rocchio (3 pp., TBI Challenge, Vol. 3, No. 3, 1999)
  • Patient Information (2 pages, FAQs on neuropsychological evaluations, from the website of the National Academy of Neuropsychology, www.nanonline.org no date, downloaded 2003)
  • Referral Considerations: History & Symptoms Checklist, by Regina Gunsett, PhD (early 90s, six-page outline on mild BI symptoms, neuropsychological evaluation, and residual effects of BI on daily functions such as relationships and organizational skills)
  • What is a Neuropsychological Evaluation? (2001, two page brochure downloaded from the website of the National Academy of Neuropsychology, www.nanonline.org)
     

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PAIN MANAGEMENT

  • Chronic Pain Management
  • Post Traumatic Headaches: A Pain in the Brain, by Nathan Zasler, MD, (no date, three pages)
  • What is Pain Management and what is the Role of a Pain Specialist? (July 1994, Today’s Columbus Woman)
     

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PEDIATRIC BRAIN INJURY

  • Children with TBI, by Ron Savage (2 pp., 1993, article in TBI Challenge)
  • FAQ’s about Behavior after BI, by Ron Savage & Marilyn Lash (2 pp., no date, from Lash and Associates, downloaded from www.lapublishing.com)
  • FAQ’s about Speech & Communication after BI, by Roberta DePompei, PhD, (2 pp., no date, Information Sheet from Lash & Associates)
  • FAQ’s about Brain Injury in Children, by Marilyn Lash (2 pp., no date, answers about BI and special education)
  • Helping Teens after Brain Injury (Tip Card, Lash & Associates)
  • Information for Emergency Departments: Mild Brain Injury in Children, by Marilyn Lash (2 pp., 1995, about long-term effects of brain injury, for parents after their child is released from the ED)
  • Legal Issues When Teenagers Become Adults after Brain Injury (Tip Card, Lash & Associates)
  • Meds after Brain Injury (Tip Card, Lash & Associates)
  • Minor Head Injury in Children - out of sight but not out of mind, by Thomas J. Boll, PhD, (8 pp., NHIF 1984)
  • Neurodevelopmental Disorders: Improving Clinical Communication (2 pp., 1993, from Headlines, about helping the family during and after diagnosis of head injury)
  • Paving the Road to a Brighter Future when Your Child has a Disability (2 pp., no date, brochure for parents on transition steps)
  • Pediatric Brain Injury: Behavioral Sequelae, Michael P. Mozzoni, PhD (4 pp., no date, outlines deficits, management strategies, needs of families)
  • Pediatric Brain Injury Calls for Comprehensive Care (one page, 1992, from Headlines)
  • Pediatric Brain Injury May Last a Lifetime, by Charles N. Simkins, Esq., (12 pp., no date)
  • Reaching Challenging Kids: Neurobehavioral Interventions (one page, 1992, from Headlines)
  • RRTC Report on Pediatric Traumatic Brain Injury (4 pp., 1990, from VCU, by Waaland, PhD, neuropsychologist)
  • Setting up the Home when a Child has Complex Medical Needs (Tip Card, Lash & Associates)
  • This is Our Child…This is Your Client (1991, three pages, improving the relationship between parents and professionals)
  • Through the Eyes of the Law: the Pediatric Perspective (2 pp., 1994, i.e. Magazine, for parents addressing the case of their child’s personal injury in civil court)
  • The Unplanned Journey: When You Learn Your Child Has A Disability (mid-90s, NICHCY publication, supporting the family, gaining services, includes resources)
     

PEDIATRIC SAFETY

  • Fact Sheet On The Relationship Between Head Injury and Child Abuse (3 pp., no date)
  • Important Information about Shaken Baby Syndrome: A fact sheet for professionals (1999, from a New Hampshire human services website)
  • A Moment’s Rage, a Baby’s Life (6 pp., article from 1997 Woman’s Day magazine, downloaded from sbs.com)
  • Shaken Baby Syndrome Fact Sheet (1999, from BIA of America website)
  • Summertime: Time for Outdoor Fun...and Head Injuries to Kids (2 pp., 1991, Rehab Update)
  • Ten Things Parents of Children with Shaken Baby Syndrome Want You to Know (2 pp., message from families to professionals made at the 1996 National SBS conference, see www.shakenbaby.com/frameset_library.htm )
     

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PEOPLE FIRST

  • Ten Do’s and Don’ts when You Meet a Person with a Disability (1990, one page, reprinted by the Governor’s Council on People with Disabilities)
  • Do's & Don'ts with Disabilities
  • People First Language Guide
  • The Kids on the Block (a two page description of this program for kids learning about disability, understanding the nature of differences, and increasing awareness of safety and social concerns. It uses puppets that represent disabilities, including brain injury)
     

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RECREATION (camps, travel & leisure activities, sports

  • Accessible Wildlife Recreation
  • Brain Injury and Therapeutic Riding (1996, 3pp., Strides, Brain Injury Association of America)
  • Leisure Education--A Step Toward Wellness (1993, 11pp., Mary Beth Moore & Diane Kaiser)
  • Sports for Disabled Individuals (1981, 2pp., Rehab Brief: Bringing Research into Effective Focus, Dept. of Ed.)
  • Virtual Reality (1p., Thomson New Service, Vicki Smith)

     

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REHABILITATION

  • 12 Communication Tips for Counseling People with TBI
  • Art & Brain Injury Recovery (2 pp., no date)
  • Brain Injury and Therapeutic Riding (3 pp., from Strides, April 1996, medical considerations, literature review)
  • Cognition 101: The Basics, by Carolyn Rocchio (one page, no date)
  • Cognition? Perception? What do they mean for families of brain-injured patients (4 pp., No date, perceptual and cognitive deficits)
  • Cognitive Rehabilitation (2 pp., 1996, compensatory strategies)
  • Cognitive Rehabilitation - Questions & Answers
  • Community Re-Entry Following Traumatic Brain Injury
  • Complex People, by Harvey E. Jacobs (3 pp., 1993, excerpted from H.E. Jacobs, Behavior Analysis and Brain Injury Rehabilitation: People, Principles, and Programs)
  • Integration by Inclusion: Bridging the Gap Between the Rehab Facility and Home, (4 pp., 1996, from Disability Today)
  • Living With Head Injury: Post-Rehabilitation Recovery, by Judith Falconer (4 pp., 1990)
  • National Institutes of Health (NIH) Consensus Development Conference Statement on Rehabilitation of Persons with TBI (Oct. 26-28, 1998)
  • Preparing Patients & Families for the Rehabilitation Process (no date, needs of families in the course of rehab)
  • Quality Community Integration after Traumatic Brain Injury, by John Corrigan (4 pp., no date)
  • Recovering from Head Injury: a Continual Process, by Judith Falconer (1990)
  • Restructuring Self-Esteem After Brain Injury, by Stanley Seaton, MD, (no date, one page)
  • The Role of Music and Music Therapy in the Rehabilitation of Traumatically Brain Injured Clients, (18 pp., no date, by M. Susan Claeys, Rebound, Inc., Tennessee)
  • The Silent Epidemic: Rehabs of People with Traumatic Brain Injury (4 pp., no date, from Rehab Brief, Vol. IX, No. 4, types of injury, functional effects, interventions, factors in improvement, concerns in vocational rehabilitation)
  • Some Facts About Music Therapy (7 pp., no date)
  • Structure, Structure…Everywhere, by Heike Kessler-Heiberg, SLP (2 pp., from San Diego Head Injury Foundation newsletter, February 1993)
  • A TBI Survivor Talks to Professionals (3 pp., 1991, rapport, learning, communication, do’s and don’ts)
  • A Team Effort, Who's Who Along the Rehab Continuum (5 pp., 1996, magazine article from Disability Today - the final paragraph appears to be incomplete as the article ends in the middle of a sentence due to an apparent editing error)
  • Understanding and Treating Perseveration in Brain Injury Rehabilitation, by Lennard Shangi, PhD (7 pp., from Brain Injury Source, Vol. 1, Issue 1, Fall 1997)
  • Utilizing a Rational Behavior Therapy Approach in Brain Injury Rehabilitation, by Stanley Seaton, MD (1995, one-page article in the newsletter (four pages) Viewpoints: Issues in Brain Injury Rehabilitation, Summer 1995, published by Tangram Rehabilitation Network)
  • What is Cognitive Rehabilitation, by Julie Schlanger (one page, no date)
  • The Whatever It Takes Model (WIT) (2 pp., no date, from Barry Willer, RRTC on Community Integration, Univ. of Buffalo)
     

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SEIZURE DISORDER/EPILEPSY

  • Detection & Management of Seizure Disorders: The Role of Behavior Observation, by Judith Falconer, PhD (1990, five-pages)
  • Epilepsy and the School…Age Child (no date, six page article on psychological, social, medical aspects, responsibility of school staff, and record-keeping)
  • Epilepsy as a Consequence of Brain Injury, by Carolyn Rocchio (no date, two-page article covers types of epilepsy, diagnosis, and control)
  • Head Trauma & Epilepsy
  • Post Traumatic Seizures…Following Brain Injury, by Nathan D. Zasler, MD (1991, four-page special topic report from VCU commenting on definitions, incidence, prognosis, risk factors)
  • Post Traumatic Seizure Disorder, by Susan H. Pierson, MD (1994, two-page overview of seizure types, causes, safety procedures, treatment)
  • Epilepsy: Some Basic Facts (no date, no author, three-page fact sheet)

     

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SEXUALITY

  • Adolescents with Brain Injury: Issues of Sexuality (3 pp., 1994, article in i.e. Magazine)
  • Coping with Sexual Problems after TBI (no date, TBI Consumer Report #5, reports interview results compiled by the Research and Training Center on Community Integration of Individuals with TBI)
  • Evaluating Birth Control for Adults with Traumatic Brain Injury, by Paul R. Sachs, PhD, (one page article, TBI Challenge, Fall 1993)
  • Massachusetts Rehab Comm., Sexuality Committee
    Rediscovering Intimacy, by W.F. Blackerby, PhD (4 pp., article, TBI Challenge, Fall 1993)
  • Sexuality after a Person Has a Brain Injury, by David Strauss, PhD (Tip Card, Lash & Associates)
  • Sexuality is a Family Matter, by Carolyn Rocchio (2 pp., 1997, article in Family News and Views)
  • Talk of Sex and Feelings Part of Recovery Process, by David Strauss, PhD (2 pp., 1996, reprinted with permission from Connections, Vol. 3, No. 1)
     

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SPORTS AND BRAIN INJURY

  • Articles (miscellaneous)
  • Contact Sports and Concussion (2003, “keep up the competition, but take every concussion seriously,” downloaded March 4, 2003 from www.msnbc.com, two page summary from a transcript of Q&A interview with researcher Dr. Michael Collins on the impact of concussion in kids)
  • Giant Steps, (June 14, 1999, People Weekly, four-page article about ex-Detroit Lion Mike Utley, paralyzed in 1991 after falling on his head, suffering a spinal cord injury, and his work to regain function and feeling)
  • Link Demonstrated between multiple concussions and neuropsychological deficits in college athletes, (one-page article in Inside View, 9.1 2000, Centre for NeuroSkills)
  • Traumatic Brain Injury and Concussion in Sports, James P. Kelly, MD, (3 pp., article, JAMA, Sept. 8, 1999)
  • Traumatic Brain Injury in High School Athletes, John W. Powell et al, PhD, (6 pp., article, JAMA, Sept. 8, 1999)
  • A free helmet fitting guide
     

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STATISTICS

  • Brain Injury: An Estimated 5.3 Million Americans… (2 pp., BIAA fact sheet, 2001, defines TBI, ABI, incidence, disability, causes, consequences that are cognitive, physical, and emotional)
  • Brain Injury Incidence and Prevalence (one-page fact sheet from BIAA, 2000)
  • Epidemiology of TBI in the US (late 90s, CDC Report on incidence, causes, disability, trends, outcomes, and public health surveillance, downloaded from cdc.gov/ncipc)
  • Public Spending on TBI (one-page fact sheet downloaded from BIAA, dated June 2000)
  • TBI Data Summary (one page, taken from Ohio Legal Rights Service brochure: A Typical Day in the USA, August 12, 1999)
  • TBI in the US: A Report to Congress (22 pp., Dec. 1999 report downloaded from cdc.gov/ncipc summarizing current knowledge about incidence, causes, severity, associated disabilities, and prevalence of TBI)
  • TBI Versus… A Comparison of TBI and Leading Injuries or Diseases (2 pp., 2001, BIAA fact sheet)
  • A Typical Day in the USA, August 12, 1999, facts about Brain Injury (4 pp., 1999 Ohio Legal Rights Service brochure shows numbers of Ohioans and Americans affected by TBI)
     

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STRESS

  • The Art of Relaxation (1983, 1p., U.S. Dept. of Health and Human Services)
  • Coping with Long-Term Stress (1p., Excerpts from Colorado HIF Newsletters)
  • Handling Stress (1991, 1p., Plain Talk Series, U.S. Dept. of Health and Human Services)
  • Manage Stress more Effectively (no date, two pages, selected text from Getting Better (and better) After Brain Injury/A Guide for Family, Friends, and Caregivers--25 Ideas for Living Smarter and Happier, on-line version. Downloaded August 5, 2003 from The National Resource Center for TBI)
  • The Relaxation Response: A Viable Approach to Stress Reduction
  • Stress Management Following Head Injury
     

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SUBSTANCE ABUSE

  • Alcohol, Head Injury and Neuropsychological Function (four authors, 1992, Neuropsychology Review, vol. 3, No. 3)
  • Alcohol Is An Insidious Drug, by Maria Johnson (1994, 4 pp.)
  • Alcohol & Other Drugs Can Be Harmful After Head Injury (no date, no author, 5 pp., charts listing specific drugs, their effects, and symptoms of abuse and a chart showing possible effects in common between TBI and drug or alcohol use)
  • Beliefs & Attitudes Questionnaire (2 pp., no date, no author)
  • Chemical Abuse in Head Injury, by J. Falconer & E. Tercilla (1990, 8 pp.)
  • Did I Mention the Teeth? by J. Bogner, G. Lamb-Hart (4pp., i.e. Magazine, Vol. 3 (1), 1995, a publication of the Ontario Head Injury Association [no longer being published])
  • Enabling: When Helping is Not Helping (fact sheet, 1 pp., Source: Dateline DREAM, October/November 1995)
  • Head Injury & Alcohol – A Bad Mix, by Francis R. Sparadeo, PhD (1 pp. 1990, printed in the Maryland Head Injury Foundation Newsletter, vol. 8, no. 1)
  • A Look at Alcohol & Other Drug Abuse Prevention and ... Symptoms Checklist (2 pp. No date, no author, produced by the Resource Center on Substance Abuse Prevention and Disability)
  • A Look at Alcohol & Other Drug Abuse Prevention and...Traumatic Brain Injury (4 pp. No date, no author, produced by the Resource Center on Substance Abuse Prevention and Disability)
  • A Model of How People Change: Stages and Processes of Change (no date, no author, 6 pp., describes stages and processes of change that apply to addictive behaviors, interventions, case example from 1991-92)
  • An Overview of Substance Abuse and Brain Injury, by David Strauss, PhD, (2001, 6 pp., from Brain Injury Source, vol. 5, issue 4, addresses brain injury and SA, rehab, re-entry, treatment suggestions)
  • The Relationship between TBI & Substance Abuse (no date, no author, 2 pp., basic fact sheet about effects of TBI on SA risks, inherent challenges in treatment of the dual diagnosis client)
  • Some Facts Regarding Substance Abuse (no date, no author, 2 pp., basic fact sheet on SA risks for those with TBI, showing need for SA screening in acute settings when a TBI is diagnosed)
  • A Substance Abuse Program for Head Injury Survivors, by Bill Peterman (no date, 4 pp., outlines methods and adaptations used to treat SA with TBI)
  • What Rehabilitation Professionals Need to Know about Substance Abuse (9 pp., no date, no author, addresses implications for prevention and treatment, symptoms checklist indicating problems, screening for use questionnaire, effects of used substances)
  • What Substance Abuse Professionals Need To Know About T.B.I. (no date, no author, 5 pp., describes causes, mechanisms, recovery, and deficits of TBI with SA complications, provides a brief screening tool)

    Information about the Substance Abuse / TBI Problem:
    1. TBI Workshops, Alcohol and Traumatic Brain Injury, Why Alcohol is Dangerous After TBI. (no date, one page, handout from 2003 training, Donna Pleli, Edwin Shaw Hospital / Adult Chemical Dependency Program)
    2. Substance Use and Abuse after Brain Injury: A Programmer’s Guide. (1997, Ohio Valley Center, Source: handout from 2003 training)
    Screening Tools:
    3. Problem Substance Abuse (defines Substance Dependence and Substance Abuse) Source: handout from training (Corrigan, Lamb-Hart)
    4. How to tell if you Have a Problem with Alcohol (brochure). (Source: handout from 2003 training, Donna Pleli, Edwin Shaw Hospital / Adult Chemical Dependency Program)
    5. What Is Post Acute Withdrawal? (1 page) (Source: handout from 2003 training, Donna Pleli, Edwin Shaw Hospital / Adult Chemical Dependency Program)
    6. Short Michigan Alcohol Screening Test (1 page) (Source: handout from 2003 training, Donna Pleli, Edwin Shaw Hospital / Adult Chemical Dependency Program)
    7. Michigan Alcohol Screening Test (M.A.S.T.) (1 page with answer key) (Source: handout from 2003 training, Donna Pleli, Edwin Shaw Hospital / Adult Chemical Dependency Program)
    8. SASSI-3, Substance Abuse Subtle Screening Inventory (diagnostic survey form with scale / rating information), Basic Notes for Understanding the SASSI Scales, DSM-IV Information on Substance Use Disorders, (Source: handout from 2003 training, Donna Pleli, Edwin Shaw Hospital / Adult Chemical Dependency Program)
    Treatment Suggestions:
    1. Suggestions for Substance Abuse Treatment Providers Working With Persons Who Have Limitations in Cognitive Abilities. Source: handout from training (Corrigan, Lamb-Hart)
    2. State Dependent Memory (1 page) (Source: handout from 2003 training, Donna Pleli, Edwin Shaw Hospital / Adult Chemical Dependency Program)
    Screening / Treatment Combination:
    1. Utilities for Community Professionals: Brain Injury and Substance Abuse (1998, Ohio Valley Center), tools for faster, more reliable operation of a brain after injury. Booklets in the series include:
  • Whatever It Takes: 10 principles for community professionals helping persons with brain injury.
  • ABUSE Screening: How to screen for substance abuse among persons with brain injury.
  • TBI Screening: How to screen for traumatic brain injury.
  • Stages of Change: How people change addictive behavior and what supports the change process.
  • Motivational Interviewing: A counseling technique to help people make difficult changes.
  • Community Teams: How community professionals can work together collaboratively.
    Materials for Consumers:
    1. User’s Manual, For Faster...More Reliable Operation of a Brain after Injury. (1997, Ohio Valley Center, Source: handout from 2003 training)
    Resources for SA/TBI Speakers (PowerPoint presentations):
    1. Substance Abuse and Traumatic Brain Injury presentation printout (Source: handout from 2003 training, Donna Pleli, Edwin Shaw Hospital / Adult Chemical Dependency Program)
    2. Scope of the Problem, TBI “101” presentation printout (Source: handout from 2003 training, Dr. Corrigan, OVC)
    3. Substance Abuse “101” presentation printout, (Source: handout from 2003 training, Gary Lamb-Hart, OVC)
     

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SUPPORT GROUPS

  • Brain Injury Support Groups: Services for Children & Adolescents (7 pp., J of Cognitive Rehabil, Nov/Dec 1994)
  • Can We Make A Difference? Greater Need for Self-Help in an Era of Managed Care (2 pp., 1995)
  • A Guide for Developing a Successful Brain Injury Support Group
  • Guidelines for Developing Support Groups (2 pp., 1986, purpose, objectives, composition, leadership in a brain injury group)
  • Practical Guidelines for I&R (one page, 1994, from NHIF Family Advisory Council)
  • Start Up Packet (information on starting a new support group)
  • Support Systems Improve Quality of Life for All, Carolyn Rocchio (2 pp., 1996)
  • What is a Brain injury Support Group (2 pp., no date, FAQs on use of the BI group)
     

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SURVIVOR

  • 10 Tips for a Better Memory
  • Barriers to Optimal Quality of Life
  • Community Building Roles for Connections
  • Consider the Lilies of the Field: How They Grow
  • Empowerment
  • Empowerment - The Real Thing
  • Friends: A Manual for Connecting Persons with Disabilities and Community Members, Angela N. Amado et al, (1990, 80 pages)
  • Friendship As A Safe Harbor
  • Hitching a Ride on the Road to Recovery
  • Leisure Time Planning
  • Myths Are The Greatest Barriers
  • Pets: A Motivational Tool for TBI
  • Positive Attitude Tips
  • Restructuring Self-Esteem
  • Tips for the Person with a Head Injury
  • Turn Off the TV and Tune Into Life
  • Unobvious Disabilities
  • What Does It Feel Like To Be Brain Damaged? By Frederick R. Linge, Clinical Psychol, Mental Health Centre, Penicton, British Columbia (no date, eight pages)
  • When A Disability Makes You Feel Left Out
     

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TBI (General)

  • Ask the Doctor: Anoxic Brain Injury (6 pp., by Nathan D. Zasler, in Brain Injury Source, Vol. 3, Issue 3, includes a bibliography)
  • The Brain--How It Works and How It's Injured (3 pp., brief overview, no date)
  • Brain Region Functions and Changes after Injury (3 pp., adapted from Robert P. Lehr, PhD, Brain Functions & Map article at www.neuroskills.com, downloaded July 18, 2002)
  • Cognition is the Key to the Way We Think and Act, by Carolyn Rocchio (2000)
  • Defining Brain Injury (1997) (Official BIAA definitions - Acquired BI and Traumatic BI)
  • Effects of Injury to Specific Brain Regions (4 pp., adapted from Robert P. Lehr, PhD, Brain Functions & Map article at www.neuroskills.com, downloaded July 19, 2002)
  • Fact Sheet: Hypoxic-Anoxic Brain Injury (7 pp., downloaded 10/8/98, Family Caregiver Alliance site)
  • How To Relate To A Head Injured Person , by Mark D. Mitchell (9 pp., 1988)
  • Traumatic Brain Injury Facts: An Overview (2 pp., no date, pdf from www.nashia.org)
  • Traumatic Brain Injury Facts: Emergency Medical Services, (2 pp., no date, pdf from www.nashia.org)
  • The Unvarnished Truth – There is no cure for brain injury, Carolyn Rocchio (3 pp., 1998)
  • What Are The Characteristics Of Persons Who Have Survived Head Injuries? (1 p., no date, a simple listing)
  • What Is Anoxic Brain Injury, David F. Long, MD (4 pp., 1990)
  • What to Expect after TBI, by Tom Novack, PhD, (9 pp., from the Recovery after TBI Conference, Sept, 1999)
     

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TRANSPORTATION

  • Catering to Travelers Who Have Disabilities
  • Driving After Brain Injury
  • Driving After Brain Injury Evaluation
  • Epilepsy and Driving
  • Preferred Practices To Keep In Mind As You Encounter Guests Who Have Disabilities
  • Preserving the Past & Making It Accessible
  • Special Needs Travel
     

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VISION AND HEARING (post injury)

  • Head Injury Causing Post-Trauma Vision Syndrome
  • How Does Brain Injury Affect Vision & Perception (early 90s, 1 pp., Q & A from Headlights, Hillside Rehab Hospital)
  • Hyperacusis
     

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VOCATIONAL

  • Back to Work? Options after a neurological disability (Tip Card, Lash & Associates)

  • The High Cost of A Bump on the Head (no date, two-page article on components of worksite head injury programs, facts and guidelines for employers, reprinted from Business and Health)

  • It Pays to Work…A guide to help people on SSI and SSDI decide about employment (old booklet from COVA)

  • Milestones to Employment (1999, a very brief “tip card” from Cincinnati agency for youth with disabilities who receive transition services)

  • Reaching Out with Few Supports (mid 90s article, post injury complications and return to work issues, Maryland legislative efforts to address problems)

  • Rejoining the Workforce: There are no simple solutions. (no date, two-page article reprinted from TBI Challenge, by Robert T. Frazer, PhD, Professor of Neurology, Univ. of Washington)

  • Some Ideas to Keep in Mind when Working with a Person Disabled by a Head Injury (1990, one page, Craig Hospital, Dept. of Speech-Language Pathology)

  • Structuring Jobs for Persons with Head Injuries (no date, brief one page article)

  • Thinking About Work: Services that Can Help (Tip Card, Lash & Associates)

  • Tips for Seeking & Keeping a New Job (no date, one page brief list for seeking and maintaining a job, self-eval, and worksite eval ideas)

  • Vocational Rehabilitation Issues for Youth (1992, two page article from newsletter for TBI professionals from VCU on long term rehab needs of people with severe TBI)

  • Work Readiness after TBI (1995, from NHIF Family News and Views two page article)

  • Work Site Accommodations (no date, brief one page article, types of accommodations for various cognitive disabilities—LD, MR, TBI)

  • Working Effectively with Employees Who Have Sustained a Brain Injury (1994, 3 pages, from Program on Employment and Disability, Cornell Univ. job training, productivity, accommodation, ADA implications for those with TBI).

  • Working Effectively with Persons Who Have Cognitive Disabilities (1999, from Janweb site, considerations in accommodating cognitive disability – aimed at employers, job coaches, etc,.)


     

*Under each category there is an additional Miscellaneous File which contains originals of infrequently used information.


Filename: FRED List to Website.doc

Revised March 23, 2004

 

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